HD Reach

HD Reach is working to improve the care and quality of life for those affected by Huntington’s disease. Founded as a nonprofit in 2009, we provide connections to medical providers, referrals to local services, care management, family support, education, and anonymous genetic testing.

We provide connections to local services, care management, family support, and education.

• HD Groups & Clubs

  Many find that being part of the HD community is like being part of a larger, stronger family, a group of people who understand your feelings and struggles. Social support, so important to problem solving and developing a sense of connectedness, provides opportunities for families to learn from others who have traveled the same road, allowing families to solve problems more quickly and efficiently. Experienced HD families and caregivers are often the best source of practical and effective information about HD and managing its symptoms. HD Reach facilitates family support groups in major areas of the state, including Raleigh, Triad, Charlotte and Wilmington.

• Education for Families Affected by Huntington's disease

  Educational opportunities help families make well-informed decisions so they can be proactive to reduce stress and family conflict. Through our website, phone support, social media, and events, we aim to provide accurate information about the disease and its progress to help plan and make good decisions.

• Resources and Referrals

  Access to care through social workers trained to assess HD patients’ needs, location and connect families to providers and resources or organization best able to manage your concerns. We help HD patients, families, caregivers, and in some cases providers know what resources are available to help them make good decisions.

• Care Management for Patients, Caregivers, and Family Members

  Healthcare has become increasingly complex, which can present major barriers to care for people with HD, working families, or caregivers struggling to manage care demands. In collaboration with your healthcare provider, HD Reach provides patient-centered, goal-directed care navigation.